My body is a battlefield.
It took me about seven years to complete my bachelor's degree due to the setbacks and complications that come with sickle cell.
Sickle cell had literally deteriorated my body.
There are already so many roadblocks to finding care and even qualifying for treatment –– high prices should not be a factor for patients.
Another day is not a guarantee.
At 23 I lost my best friend to this disease and I realized that, for any of us with sickle cell, another day is not a guarantee. I know that when I walk into the ER, I might not walk out.
A cure for this disease would change the lives of so many.
We need laws in place that will allow all patients, regardless of background, to have access to life-saving medication.
Insulin affordability is a crisis.
I have to find innovative ways to gain access to the drugs I need just to survive. I ration my medication and buy expired or leftover insulin.
My prescription bill is enough to buy a new car every month.
Benlysta has completely changed my life. Without it, I cannot even get out of bed. How can I suddenly stop taking a drug that I need in order to function?
Prices must come down.
For a single mom, it’s challenging know that the $80-$130 I spend monthly on the drug could go very far for my children.
I left the pharmacy in tears.
We have to make many sacrifices in order to afford the drugs he needs just to live.
