Patient Testimonies

Real Stories, Real People

Patient Testimonies

This isn't a game.

If you own Boardwalk and Park Place, you rule the world. That’s one of the many lessons I’ve learned from my daughter Rose – who, at 19, is living and thriving with cystic fibrosis, or CF. Rose is a scholar who is attending Bowdoin College in Maine. She’s an expert dressage rider who hopes to […]

Patient Testimonies

How will my daughter afford this drug for the rest of her life?

My name is Clayton McCook, and I’m a dad and an equine veterinarian from Oklahoma. My 12-year-old daughter Lily McCook could die within days of complications from type 1 diabetes without insulin. A vial of Novolog by the drugmaker Novo Nordisk costs $340, and she needs up to two per month to survive. My wife, […]

Patient Testimonies

I've been forced to ration my insulin or simply go without.

My name is Marcus LaCour and I’m a husband, father, and minister from Cincinnati, Ohio. In 2000, during my sophomore year of high school, I was diagnosed with type 1 diabetes.  After feeling lethargic and having blurry vision, I went to the hospital for what doctors thought was just a viral infection. When they checked, […]

Patient Testimonies

What good will new drugs do if they are too expensive for me to access?

My name is Jacqueline Garibay and I’m a 19-year-old college student from Austin, Texas.  Last year, I was diagnosed with Ankylosing Spondylitis, an autoimmune disorder that primarily affects my spine and has spread to most of my major joints. Without expensive biologic medications, my spine could fuse and leave me unable to walk by the […]

Patient Testimonies

I was forced to ration my supply of a drug that is as vital to me as water.

My name is Iesha Meza, and I’m from Phoenix, Arizona. In 2012, at the age of 21, I was diagnosed with type 1 diabetes. At the time, I was married and living in North Carolina, but soon my circumstances changed –– I separated from and eventually divorced my spouse, moving back to Arizona, where I […]

Patient Testimonies

I don’t know how I’ll be able to afford treatment.

My name is Lynn Scarfuto and I live in Herkimer, New York. I’m a retired nurse, having worked with cancer patients as a nurse navigator for nine of my 25-year career. My job was to work with cancer patients to ensure they received the best treatment possible. After retirement, I was diagnosed with chronic lymphocytic […]

Patient Testimonies

Without this medicine, I would be unable to move.

My name is Ginny Boynton and I’m from Mechanicsburg, Pennsylvania. I am a mom to two sons, and I used to be active in sports and outdoor activities –– until 2001, when I started having mobility issues. When my kids were finishing kindergarten and third grade, respectively, I started having physical difficulty with certain tasks. […]

Patient Testimonies

I don’t know how I will afford my medicine.

My name is Vivian and I live in Benton, Arkansas. I’m 75 years old and currently take Incruse Ellipta for my Chronic Obstructive Pulmonary Disease (COPD). COPD is a chronic disease that inflames my lungs, often making it hard to breathe. COPD often causes daily coughing and can worsen over time without treatment. When taking […]