Patient Testimonies

Real Stories, Real People

Patient Testimonies

Jackie's Story

My name is Jackie Trapp. I live in Muskego, WI and have been married for 34 years to my wonderful, loving husband. In August of 2015, I was diagnosed with multiple myeloma, an incurable blood cancer. To treat my cancer, I take a drug called Revlimid, and it is unbelievably expensive. With my current Medicare […]

Patient Testimonies

Steven's Story

My name is Steven Hadfield. I am 70 years old, a long-time North Carolinian, a husband, a grandfather of three, and a football fanatic. I’m also a rare cancer and type 2 diabetes patient. Living with multiple conditions brings a host of expensive drugs — to afford mine I work multiple jobs. Just for my […]

Patient Testimonies

The current drug pricing system isn’t working for patients like me.

My name is Emily. I’m a 26-year-old from Washington, D.C., and I live with psoriatic arthritis. Growing up, I always had various injuries and illnesses and tendonitis in nearly every joint. I never had a specific diagnosis to explain all of these symptoms until five years ago. My journey to being diagnosed with psoriatic arthritis […]

Patient Testimonies

The pharmaceutical industry preys on families.

My name is Hailey Adkisson, and I live in Salem, Oregon. In August 2020, at just six months old, my daughter, Juniper, was diagnosed with infantile spasms — a rare and catastrophic form of childhood epilepsy. Since then, she has undergone two brain surgeries, most recently, a hemispherectomy which removed the entire right hemisphere of […]

Patient Testimonies

The time for change is now

My name is Kitty Kennedy and I live in Tucson, Arizona.  I am a retired senior who relies on Medicare, and I have a two-part story to share about how Medicare has affected my life.  I am extremely fortunate to have supplemental health care coverage through my retirement plan. It has covered the expensive drugs […]

Patient Testimonies

The prices of their medications could impact their dreams.

My name is Noelle Tuominen, I’m from Livermore, CA, and I’m a mom to two children with type 1 diabetes. My daughter and my son were each diagnosed at 1 year old  — they now are 4 and 1, respectively. We quickly realized that keeping people with type 1 functioning and healthy is incredibly expensive, […]

Patient Testimonies

To keep advocating for others, I need to afford my medication.

My name is Samantha Norris and I’m from Auburn Hills, Michigan. The drugs keeping my Hodgkin’s lymphoma in remission are priced at more than $1 million a year. I’m currently $20,000 in debt due to my health challenges, including from covering the exorbitant prices of my medications. Bills arrive all the time, and I’m overwhelmed […]

Patient Testimonies

Luxury pricing for a necessity.

My name is Kat Schroeder, I live in Arlington Virginia, and since the age of 9, I have been living with type 1 diabetes.  That means that every day — every hour, really — since I turned 9, I have relied on insulin just to stay alive. This insulin is currently priced at almost $300 […]