Real Stories, Real People
Patient Testimonies
Price Fighting Hero: Victoria Stuessel
Victoria Stuessel is 34- year-old wife and mother living with multiple sclerosis, a degenerative and progressively disabling disease of the Central Nervous System. Like Americans with multiple sclerosis, she relies on high-priced prescription drugs to slow the progress of the disease and treat the symptoms. Victoria has paid up to $7,000 a month for her […]
Patient Testimonies
Price Fighting Hero: Scott Gottlieb
Under Scott Gottlieb’s leadership as the head of the Food and Drug Administration, the FDA has focused on bringing more generic drugs to market to compete with pricier name-brand drugs and help lower prescription drug prices. Competition increases when generic drug and biosimilars are made available and, in turn, the price of patient’s prescription drugs […]
Patient Testimonies
My name is April. My breast cancer drug costs $13,000 a month. This is how I took a stand
My name is April. I live and work in Pensacola, Florida with my wonderful husband and our 11-year-old son. I also have incurable breast cancer. My prescriptions are important. Without them, I’ll die. I’m on a new targeted therapy called Ibrance, which will extend my life and my time with my family — but it costs […]
Patient Testimonies
My name is Juliana Keeping, and my son, Eli, is a 5-year-old boy who loves pizza, Legos, and construction trucks. This weekend Eli played Frisbee at the National Mall, rode his scooter and took a spin on the Merry-Go-Round with friends at the park. Looking at such an active and happy child, it may come […]
Patient Testimonies
Drug Prices are Putting My Son's Health at Risk
Duchenne Muscular Dystrophy is the most common fatal genetic disease of childhood, affecting 1 in 3,500 boys. In 2007, I found out that my 8-year-old son was one of them. We sought the best medical care, but all the doctors could offer for this relentless muscle wasting disorder was a corticosteroid, an anti-inflammatory medicine that […]
Patient Testimonies
My name is Stacy Ransom. I’m from Southern California and I live with Crohn’s Disease. Six months before doctors gave my condition a name, I began to experience excruciating, debilitating pain every time I took a bite of food. Because eating sent shock waves through my system, I rapidly lost weight. I worked at a […]
Patient Testimonies
My name is Pam Holt. I’m 68 years old, a mom, a grandmother, and a retired first and second grade teacher. I’ve traveled from my home in Indiana to Washington, DC this week. Before I tell you why, and what I hope to do, I want to tell you what led me here. In […]
Patient Testimonies
Skyrocketing insulin prices threaten Oklahoma family
January 29 Lily McCook’s room is full of stuffed animals, horse posters and Harry Potter books. Early each morning, as she sleeps under a fluffy comforter emblazoned with more horses, her favorite animal, her dad, Clayton McCook, quietly administers her blood sugar test with a lightning-fast poke of her finger. Lily has Type 1 Diabetes, […]