Caring for patients was my life’s work as a registered nurse. While I’d seen my patients struggle with drug prices, I began to see the issue firsthand in my own life when I was diagnosed with multiple sclerosis in 2003. When I was first prescribed Copaxone for my MS, it cost me $1,800 a month and wiped out my savings. I received grants every year for my medications from 2012 to 2016. Without the grants, I would be in the Medicare donut hole after just one month. When I was unable to get a grant in 2017, the same medication cost $6,000 a month and forced me to go off of it entirely for three months. I also went off my pancreas enzymes for 6 months, all because the cost was too high.
While off my medication, I began having difficulty with my cognitive function. I felt so frustrated as I developed these cognitive difficulties. I work really hard to keep my life in order and my memory intact even with MS. It was devastating. The prohibitive price of my prescription is the reason for these problems. If my Copaxone were affordable, it wouldn’t have been easy, but I would’ve been able to keep fighting to keep my life in order and protect my memory. The high price of my medication took that power away from me. I was left dejected, unable to get the care I needed, and powerless against my condition. Because of the drug companies’ greed, I lost something so valuable –– and I’m not the only one.
The prescription drug pricing system in the U.S. is rigged against patients. We are fighting to change that.
Patients For Affordable Drugs will collect patient stories and amplify the voices of patients to make policymakers understand the heavy toll of high priced drugs.
Share your storyPatients For Affordable Drugs is the only independent national patient organization focused exclusively on achieving policy changes to lower the price of prescription drugs.
