Kami Guiden

Silver Spring, Maryland

I’m 33 years old. For just over 20 years I’ve lived with Crohn’s disease, an incurable and chronic and inflammatory illness of the gastrointestinal tract. I also live with celiac disease. Affording my medications to manage my conditions is always on my mind. I absolutely have to maintain a job with sufficient coverage to pay for my expensive drugs. But the drugs I need are so costly; job to job, I live at the mercy of drug prices and worry about if and how I will be able to afford my next infusion or refill. I’ve had to wait for my paycheck to deposit before getting refills, ration my prescriptions, and stop taking my drugs altogether because of the prices.

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The prescription drug pricing system in the U.S. is rigged against patients. We are fighting to change that.

Patients For Affordable Drugs will collect patient stories and amplify the voices of patients to make policymakers understand the heavy toll of high priced drugs.

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Patients For Affordable Drugs is the only independent national patient organization focused exclusively on achieving policy changes to lower the price of prescription drugs.