Sonoma, CA

Fibrous Dysplasia

“I was born with a rare bone disease called Fibrous Dysplasia. My disease is incredibly painful and it’s progressive. My husband passed away 4 months ago and I only receive $1,500 as a survivors benefits. I’m 66 and Medicare doesn’t cover most of my meds. I don’t think I can get my medicine this month. Oxycodone costs $205.00 a month. MSContin cost $350 a month. I can’t afford to pay anymore. I’m in severe pain and in bed most of the time and these medications are the only thing that help. I don’t know what I am going to do.”

Share your story

The prescription drug pricing system in the U.S. is rigged against patients. We are fighting to change that.

Patients For Affordable Drugs will collect patient stories and amplify the voices of patients to make policymakers understand the heavy toll of high priced drugs.

Share your story


Patients For Affordable Drugs is the only independent national patient organization focused exclusively on achieving policy changes to lower the price of prescription drugs.