Brooksville, FL

“I have been on a drug called Elmiron since 2001 to treat my interstitial cystitis. At that time, it cost about $100 per month. Since then every few months the price had gone up. Currently it is about $700 and rising. It is on a very high tier so the copay is huge and continues to increase. There is no similar alternative drug. If I do not take it I will have constant difficult to control pain in my bladder. Also more and more damage will be done to my bladder by my condition. This drug coats the bladder preventing pain and damage. My body does not make the proper lining to protect my bladder from harmful urine acids. My current solution, thank god, is to order my medication from Canada drugs who gets it from New Zealand. I get it for about $130 a month.”

Share your story

The prescription drug pricing system in the U.S. is rigged against patients. We are fighting to change that.

Patients For Affordable Drugs will collect patient stories and amplify the voices of patients to make policymakers understand the heavy toll of high priced drugs.

Share your story


Patients For Affordable Drugs is the only independent national patient organization focused exclusively on achieving policy changes to lower the price of prescription drugs.