My name is Ashley Suder. I’m from Morgantown, West Virginia, and I live with lupus. The drug I take now, Benlysta, works well, but it’s especially expensive, priced at more than $35,000 a year — about $3,000 to $5,000 a month. Benlysta’s prices are so high I know I may not always be able to get this drug.
Going without expensive medications or substituting a different one because of drug prices has negatively affected me my whole life. Drug prices have made me sicker and far less functional than I would be if I had affordable access to the proper medications. I currently work as a nursing assistant, and at times almost my entire paycheck goes towards paying for my medicines. I’m constantly relying on samples from doctors to treat my condition because it’s just so expensive. It’s no way to live, but I don’t have a choice.