At 23 I lost my best friend to this disease and I realized that, for any of us with sickle cell, another day is not a guarantee. I know that when I walk into the ER, I might not walk out.

This system enables pharmaceutical companies to turn taxpayer investment into unrestrained profit without regard to affordability or accessibility.

We need laws in place that will allow all patients, regardless of background, to have access to life-saving medication.

American Taxpayers invested hundreds of millions of dollars into a gene therapy to cure sickle cell disease; now a drug company is likely to make billions and price it out of reach.

New data show how negotiating for the 250 most-expensive drugs could save patients, taxpayers billions.

I have to find innovative ways to gain access to the drugs I need just to survive. I ration my medication and buy expired or leftover insulin.

P4AD Analysis of 2017 Medicare Part D Spending

If the children for whom these medicines are created continue to suffer and die, it’s as if the drugs were never made at all.