April 22, 2020 Blogs

It’s a lot for me to manage.

My name is Jayme Thode and I am from Taftsville, Vermont. I am disabled and live with multiple health problems. I take over 30 medications a day, not including antibiotics and other meds I need during the month for acute issues. 

It’s just awful. I spend a good amount of my disability money to pay for my medications. I have my albuterol treatment, Advair Diskus, lidocaine patches, and a few others. They each come with their own price tag that really digs into my monthly budget. Each month, my out of pocket comes out to about $200. This may not seem like much to some people, but it’s a lot for me to manage.

Lidocaine patches alone, which help me with my spina bifida, are outrageously priced. When my doctor first prescribed it to me, I realized it was $1,000 for a single box. I just couldn’t afford it. There was a point where I was in so much discomfort that I paid $60 for just a couple of packets, but I could never afford the full dose my doctor prescribed.

I am only 42 years old and I have been living in severe pain for such a long time. I wish I were able to be more active, but I do my best to give back and volunteer in my community as much as I can. I know I would be able to do more if I could better afford the medications that keep me stable. I call on my lawmakers to do something about this. I know I am not the only one suffering, and I demand action be taken around this issue.


Patients For Affordable Drugs is the only independent national patient organization focused exclusively on achieving policy changes to lower the price of prescription drugs.