| My name is Margaret and I’m from Minnesota. When I was 19 years old, I was diagnosed with Crohn’s Disease. Because I was on my parents’ insurance, I had no clue how to navigate insurance coverage for my care and medications. For a number of years, the price of my drugs never crossed my mind. But when I turned 26 and was no longer eligible for my family’s insurance plan, things got tricky.
I was ultimately added on to my husband’s insurance, but the switch was far from seamless. In addition to switching insurance I had moved to a new state, and my first infusion in California came with a copayment of $6,000. When I called to see why my patient assistance program wasn’t paying for the drug, I was told that my membership had lapsed. While I eventually regained membership, Janssen Pharmaceuticals won’t retroactively cover that first infusion –– meaning I’m stuck with a bill for $6,000 that is rapidly accumulating interest.